"All Little Stuff"...

Happy Anniversary, per say. Hit 3 years November 17th since my diagnosis in 2010. Cliché as it sounds, it seems like yesterday sometimes and a lifetime away at other times.

With that said , and as my independence wanes, I've decided that the little things are driving me crazy more than the big obvious ones! So without providing TMI(for the older crowd , that's "too much information!) here's my personal list, "ALS...All Little Stuff", of those things that are causing me to laugh and cry!

1. An itch, can't reach it or scratch it hard enough. Try it, leave that itch, I dare ya!
2. Yes I have bitten my nails forever, but no more, can't reach. Now they just get caught on things and scratch me?!
3. Some nights I can't move my bedsheets, feel like a swaddled baby trying to get free!
4. Susan's favourite-try and get someone else to adjust your pillow just how you want it, almost impossible!
5. After years of metrosexual grooming and vanity, a crazy nose hair, eyebrow or ear hair can drive you plain mad, especially when it's no one else's urgency!
6. The remote, it's getting tougher! I'll get 2 out of 3 numbers and my finger will slip...grrrr, end up on Coronation Street!
7. My computer mouse hand, when I scroll, I can't lift my finger off sometimes, so I just rock on the page back and forth...
8. I love my Diet Pepsi. Sometimes when they put it on the table for me it's "accidentally" just out of reach.
9. Climate control in the Silver Streak (van). Others run it now and though respectful of their passengers, it's just not the same.
10. I love chocolate and cookies. Now I will get to the last bite between my fingers and I can't get that final tasty treat in my mouth. It's like some force is blocking all the angles I need to pop it in!

In other news...

Had a fall, landed on my head, no worse for wear, nothing broken, just bumps and bruises.

shameless hospital selfie

Visited the voice clinic and made a decision for my voice computer for the future. It is amazing technology that will allow me to speak, email, surf the internet, all through eye gaze. Tobii and I will become BFF's and should arrive in Feb/Mar!

BFF Tobii

Last but not least, Susan and I had our initial consultation with a gastroenterologist to discuss and learn about a feeding tube. I am still eating and my swallowing is okay. But since we started this journey we have tried to be prepared and ready for the next step before we need it.
The procedure only takes about 15 minutes and you are in and out. I can still eat as normal, while I can, and the tube can subsidize additional calories. At the point in time that I can no longer eat then its blender heaven time...hell maybe I'll even try fish!
Going to the ALS clinic in December and likely to set a date in Feb/Mar to have procedure completed.

That's it, busy time and many changes to come so we keep plugging away!

Thanks for checking in!