A little bit of "this and that" today, just hitting the highlights!
Today, November 17th, marks 4 years, since our ill-fated visit to the doctor to receive the news of my diagnosis. Susan and I had just returned from our trip to Jamaica, no job, clean slate to start fresh... who knew what lied ahead? Boy oh boy was I in for a surprise!
I don't know what cliché applies more, "feels like yesterday", or "feels like a life time ago", maybe a bit of both? I remember that day and period of time vividly but the activities of my "other" life, when I think back, sometimes seem like a distant memory.
Today, we are where we are. I'll probably have my pity cry for 5 minutes at some point today and then it will be time to move on! There are others far worse off.
Health wise, I'm okay. In general, I've been healthy. ALS wise, over the last few months, I would suggest, my physical "faculties" have declined. I know I've been saying it for a while but my voice is pretty much a "caveman" now, second looks from everyone!
Still eating, though I've had a couple of swallowing incidents. A lot now off the menu and we have started to use the feeding tube to build up my tolerance for the "formula".
I'm hanging on with my computer fingers. Two hands to move the mouse and only one click finger left! The new year will bring much more "Mr. T" communication time.
Legs still hold me up, somewhat, when transferring, but when fatigue is a factor, I'm pretty much dead weight or a big old floppy fish! This, unfortunately, has led to talks of a hospital bed for a variety of reasons...woo freaking hoo.
That's the body, it ain't pretty but it's all mine!
On the mental side I would ask that you say a prayer for me and send me your glad tidings in December. No, not for those reasons!
Somehow along the way we agreed to give Myra(my manny) December off so she could go home and visit her family. What was I thinking!?
They keep telling me we will be fine but I have Myra promise everyday that she will be back in January! Stay tuned!
In other news...
Kids are great. Ben's 9 and in grade 4, Sarah 6 and in grade 1. Both busy with sports and activities and generally a pleasure to be with!
My final shout out to my Mom and Dad who celebrated their 50th wedding anniversary in October. We had an amazing weekend away with them, our family, on thanksgiving. Congratulations M/D!
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| Beth and Wendell |
That's all for now, be back soon!
